As we left off, I was recovering from my partial right thumb amputation and sentinel node biopsy. And Kellee and I got the great news, in a providential type of moment, that my sentinel lymph nodes were negative for any cancer cells. I was found to have Stage II disease. Considering that my original lesion presented 5 years earlier, it seemed almost miraculous that my metastatic workup was negative. I took the liberty to assume that my age, lack of any other medical problems, healthy diet (no red meat or dairy), and exercise level (training for triathlon) maybe was keeping my immune system strong enough to battle. And now I did not regret my crazy decision to biopsy my own nailbed!
Almost 2 weeks after my surgery, I sought a second Oncology opinion, which is often a wise idea. As a matter of fact, for every single patient to whom I recommend an operation, I offer a second opinion because I want them to feel completely comfortable both with me and their decision. I got the exact same treatment recommendations, so I kept my original team of physicians where my care would be under the same umbrella. Because of the depth of my melanoma and some other histologic factors, such as ulceration and high mitotic activity, it was felt that I would need further therapy to reduce the risk of recurrence. There are new promising drugs, that are called PD-1 receptor blockers, which help restore the T cells of our own immune system, prevent deactivation of our T cells by tumor cells, and thus restore our body’s ability to combat and destroy tumor cells. These drugs are in a class called biologics, and the treatment is a form of chemotherapy called immunotherapy, administered by intravenous infusion.
My First Infusion:
Exactly 3 weeks after my surgery, I was scheduled for my first IV infusion. I would be scheduled for a full year of treatment, with the first 5 treatments being 3 weeks apart, and then the last 5 treatments being 6 weeks apart, as long as I could tolerate the therapy. This type of drug has common side of effects of nausea, fatigue, muscle pain, bone pain, brain fog, and others. More serious side effects include conditions such has liver toxicity, pneumonitis (pulmonary toxicity), renal toxicity, and others. The drug is intended to enhance one’s immune system against tumor cells, but also can cause the body to attack itself. Naturally, there was some anxiety about how well I would tolerate the treatments. A typical infusion day involves a check-in process, going to a lab to have an IV inserted, and having extensive labs drawn. I decided to try being infused with peripheral IVs to avoid a portacath placement if my veins would hold up. After the labs are returned and evaluated, there is an appointment with my Oncologist, after which I head to the IV infusion center for IV saline fluid, followed by my cancer drug infusion, followed my more saline fluids. It is quite the process and somewhat exhausting at times.
My Mistake:
That first infusion day, I had a gap between my Oncology appt and my infusion. Therefore, Kellee and I decided to grab some lunch at the hospital cafeteria, with the IV already in my arm and all covered up by coban wrap. I also happened to be a patient at the academic medical center where I trained as a medical student and resident physician. As we entered the cafeteria, it brought back memories of late dinners alone before a long night on call in the hospital, and memories of early morning coffee and breakfast after operating all night long. It also brought back memories of my nervous stomach and GI distress, memories that were soon to become reality again! I apologize but this is about to get personal! I had been eating so healthy (anti-cancer diet to be explained in another blog), and I thought I may want some comfort food. So, I skipped all the healthy stuff and went straight for the stir fry Asian food…spicy chicken over some fried rice and maybe a fried roll also. After I consumed all of my own plate, I proceeded to eat about half of Kellee’s plate as it was just too much for her. We then checked in at the infusion center. As we entered the private room, one of the nurses asked if I had eaten a light lunch because the infusions can make one very nauseated…bahahahahahaha. I did not have the heart to tell her I was already nauseated, bloated, and flatulent….well before the infusion ever started. Lesson learned! Thank goodness for nausea medication.

My Nurse:
In all seriousness, I want to close this episode sharing about the most wonderful nurse I had. I want to share with you how nurses make such a difference in the lives of patients. I also want to thank all the nurses that have ever worked for me in my office or with me in the hospital, operating room, ER, or surgery centers. I am just going to use her initial “M.” Although we had seen a lot of care providers, it had all been about my workup, diagnosis, prognosis, percentages, and treatment. As a physician turned patient, I soon realized that sometimes we have so much schedule pressure that we do not always embrace the emotional needs of our patients: their anxiety, their fears, their worries about their jobs, their concern for finances and medical bills, their concern about their families, their spiritual health and search for truth, etc. Here I was, a right handed surgeon with an amputated right thumb, currently unable to work, and worried if I would ever work again or when, worried about my family, worried about innumerable issues. So when M came out and called me and Kellee back, she made eye contact, the kind of eye contact that says “I see you and I know you are scared.” She asked, “How are you doing?” as she reached out and tenderly touched my shoulder, in a comforting manner. As we arrived in the infusion room, she asked if this was our first time, and we said yes. She asked a little bit about my story, and heard some of the craziness of my diagnosis, how I biopsied my own thumb, and my career as a surgeon. She connected with me and Kellee, and the first thing she did was to comfort us and tell us everything to expect. I shared some of my faith journey and the wooden cross that I kept in my pocket that had not left my side since it was gifted to me by some of my OR nurses. We talked about God and faith. And then, the most amazing moment happened. She dropped down on her knees between me and Kels. She took Kellee’s hand in her left hand and she placed her right hand on top my bandaged thumb and then proceeded to pray over us, asking God to comfort us and give us peace and strength, and to trust in Him. Tears were being shed! We greatly needed that emotional connection. My infusion then went flawlessly, with the exception of the GI distress which more than likely was related to my overindulgence of stir fry at lunch!!!
Moving forward, I plan to share how I spent my time recovering from surgery, regaining strength, preparing to return to work, and most importantly, how I embraced a new lifestyle with more balance and a deeper relationship with God.



